We got an official diagnosis of Acute Lymphoblastic Leukemia. As far as leukemia goes, apparently, this is not too bad. Gabby's prognosis is very, very good - she has a 95-97% chance of being totally fine when this is over. But it's a long road to being over. She is starting chemotherapy treatments today. She'll continue with treatments for at least two years, in varying degrees. The first moth is pretty intense, then it might change slightly. She will loose her hair. She wont be able to go to school, or crowded places. We have to be very cautious with her when anyone is sick. Basically, it's going to change our reality for the next few years. We had a trip tentatively planned to Disney World in April... That's a definite no go.
Things I've learned in the last 5 days:
1. When the ICU nurse asks if you want to hang your kids artwork, get comfortable. You're gonna be there awhile.
2. 12, I hear, is the age when kids are totally capable of taking care of themselves and don't need a babysitter overnight. At least that's what #1 would have you believe.
3. Not sleeping more than 3 hours at a time for 4 nights makes you oversleep your alarm the first night you go home. And you might miss walking 1 & 2 to school. Bummer.
4. Waiting is not my thing. I dislike it.
5. I have great friends.
6. Do you know what a port is? 'cause.... I do. And its pretty much the creepiest thing I've ever heard of.
7. You never know what will happen. All my concerns about eliminating chemicals, and eating local and organic, and going no 'poo... All rendered irrelevant. You. Never. Know.
We're at the hospital at least another week. Things are going as well as can be expected - she's pretty suspicious of everyone she sees, since she keeps getting stuff done to her, but hopefully that will subside now that she has this port put in.
I'm on the fence about the Princess half. Right now, I can't imagine leaving, but I'm sure the situation will be different in 7 weeks. Its all paid for, but I'm losing a few weeks of training. Tough to say. The half this weekend is out, so I'm glad I procrastinated and didn't register.
Anyway. So that's our update. Thanks, everyone, for your thoughts. I appreciate all of them.
I just really don't even know what to say. I'm SO, SO, SO SORRY that your family is dealing with this. I am also SO, SO HAPPY that her prognosis is so promising.
ReplyDeleteI will continue to send up prayers for your precious little girl. And you.
wow. did this all just happen out of no where? I'm so sorry! I can't imagine how scary it must be for all of you, especially your daughter at such a young age. Thank goodness the prognosis is good and all the love and support of family and friends will help you get through this. Best wishes to your daughter and all of you!
ReplyDeleteI'm so sorry. It's hard to understand how these things just come out of no where but they do. I'm so glad the condition is treatable and that there is a good prognosis. My thoughts are with you. Love & strength to your daughter and whole family.
ReplyDeleteLots of prayers going your way. I hope you have find to rest and recover yourself. Thank you for updating us. We're here to support.
ReplyDeleteLC
I am not at all happy about poor Gabby - but then who would be. :( But I am very happy that they gave you a positive prognosis!
ReplyDeleteI hope you all can keep your spirits up. I can't even imagine what you must be going through right now. Sending super positive vibes your way! :)
You and Gabs are on my mind every day. We miss you guys!!! Hang in there!
ReplyDeleteHoly shit! what!?! Oh boy, does life ever have a way of sneaking up. I'm so sorry about that long road. My heart aches for what you all have to go through. I'll be running with you later today and that will help my good energy get to you faster.
ReplyDeletemy goodness. This is like my worst fear as a mother to watch my babies be sick and fight so hard. My very very best to you and your family and I do hope that things change so you can go on your trip to the half. I would think it would be restorative for you after 7 weeks of stress.
ReplyDeleteBe well.
Angie bee
i am so sorry you are going through all of this. its always sad hearing about his news and it is all too often. i run for her and all those affected by this horrible disease. prayers to you.
ReplyDeletei would say run the princess marathon. stay positive and it would be a complete stress reliever, you don't really need to train for that marathon as it is soooo much fun stopping to take photos w/all the characters--its the happiest place on earth and it will bring you joy!
I am so sorry that you are all going through this. I am glad that the prognosis is positive. I'll be praying and sending lots of positive thoughts your way.
ReplyDeleteOh no! I'm so sorry to hear this :( It's such a long treatment to be facing...but the prognosis is more promising than I would have expected. How long will you will be in the hospital? Are you close enough that you'll be able to come home after chemo treatments or will you be staying? Is there anything you need? I wish I were there to offer you help of some sort...
ReplyDeleteStacy