Tuesday, September 10, 2013

Six Months


Six months, cancer free.

Last month, she had some swollen lymph nodes in her throat - her pediatrician was surprised she hadn't complained, because they were caused by tonsillitis, and some infection funk in her throat. Gab insisted she felt fine - I'm not sure how I feel about that. Did she really feel fine? Was she so used to being uncomfortable that a little sore throat didn't even register? Did she think it was just... normal?

Who knows. I guess we'll figure it out in time.

Over the summer, we also had some cognitive testing done on her - the chemo treatments she received are known to cause cognitive issues, and we had some concerns. She came away from the testing with an "Unspecified Cognitive Disorder" - basically, something is off, but she's so young, it's hard to say what specifically it is. It's something we'll have to keep watching as she continues in school, and re-test as we go.

The last six months have been quiet, but I'm not sure that it will ever be "easy". I'm consistently on guard, watching for anything that's "off".

But - just like during her treatment - she's just a normal kid. She plays with My Little Pony, she is obsessed with dinosaurs (still), she picks up every single leaf she finds when we take a walk.

I have said this a million times, through diagnosis and treatment, but we are so, so lucky. We are lucky that she has such an optimistic attitude, that nothing phases her. We are lucky that she is the kid she is. We are lucky that we had the access to the care we did, and that it worked for her.

Today, she started first grade.




14 comments:

  1. Six months, that is fantastic!!!! :) :)

    I don't think we give kids quite the credit they deserve on their eternal optimism. They're so resilient, most of us adults could definitely take a lesson from them!

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  2. She is such an amazing kid. Happy six months and happy 1st day of 1st grade!

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  3. congrats on six months!

    kristi@runkwrun.blogspot.com

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  4. First grade! THAT's a milestone! Congratulations, all of you.

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  5. So much to be thankful for. Thanks for reminding me of this. Congrats on 6 months. Here's to many many many many many MORE.

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  6. Six months... first grade... awesome awesome. I know it isn't exactly the same, but I know that combination of "relief yet still holding your breath and watching so closely". Noah has a super rare form of epilepsy. They told us there was a less than 2% chance of getting his seizures under control. He will be four years seizure free in November, but every funny move he makes stops my heart still for a second. The longer we go without any the better chance he has of not having the seizures come back.

    Go Gabby go!! She is beautiful!!!!

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  7. you are so lucky and i love that she is so strong! must be from her mama!

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  8. This post has enough awesome for 730 days! I can only imagine how difficult it must be being on edge and not knowing, but I think the amazing thing about this journey has been showing everyone just how awesome your family is!

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  9. love this and hate it at the same time. is that possible? love that she is so normal, hate that there are still unknowns and she doesn't know the difference in being sick. always admire your strength. xo

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